International links Debra International http://www.debra-international.org A book concerning practical advice for EB patients/families http://www.icongrouponline.com/health/Epidermolysis_Bullosa.html A lot of subjects concerning EB is covered here; medical information, stories, photos etc. Please note this is a personal homepage http://ebworld.faithweb.com/ Book Announcement: Sourcebook on epidermolysis bullosa. For more information, please visit: http://www.icongrouponline.com Family Village: a global community of disability-related resources (USA) http://www.familyvillage.wisc.edu The Epidermolysis Bullosa (“EB”) Action Network is a nonprofit charitable organization committed to accomplishing the following objective: To improve the financial quality and emotional stability of EB families. http://www.ebanusa.org This website gives info about Ryan's condition(RDEB) from his perspective along with photos, etc. Please note this is a personal homepage http://ryanlewiscottrell.emuconnie.co.uk/ Funding application: DEBRA International Research Grant Applications http://www.debra-international.org/research5.htm Nordic Council of Ministers (Nordiska Ministerrådet) http://www.norden.org/web/sf4-bidrag//sk Norges Forskningsråd http://www.forskningsradet.no/utlysninger/soknad/ Stiftelsen for norske helse- og rehabiliteringsorganisasjoner (Norway) http://www.helseogrehab.no/ Danish links: DEBRA Denmark http://www.debra-danmark.dk Center for små handicapgrupper http://www.csh.dk Finnish links: Debra Finland http://www.iholiitto.fi/toimintamme/ebyhdistys.html Iholiitto ry (THE CENTRAL ORGANISATION FOR SKIN DISEASED PEOPLE IN FINLAND) http://www.iholiitto.fi/ The Netherlands Vereniging Spierziekten, The Netherlands http://www.vsn.nl/ Norwegian links: DEBRA Norway http://www.debra.no Institutt for sjeldne diagnoser(ISD)Velg ISD når du kommer inn på siden. http://www.rikshospitalet.no/isd TAnnhelse KOmpetansesenter for sjeldne medisinske tilstander(TAKO) http://www.tako.no Swedish links: DEBRA sweden http://debra-sweden.org Socialstyrelsens information om EB: http://sos.se/smkh Försäkringskassan http://www.fk.se Genderamtoscentrum vid Akademiska sjukhsuet http://www.uas.se/ Handikappombudsmannen http://www.handikappombudsmannen.se Handikappupplysningen http://www.hu.sll.se/frames/index.htm Hjälpmedelsinstiutet http://www.hi.se Länksamling till offentlig förvaltning http://www.sverigedirekt.se Nyhetsbyrån ikapp http://www.ikapp.nu Socialstyrelsen: små og mindre kända handikappgrupper (Sverige) Standardinformasjon om EB, med henvisning til ressurser i Sverige. http://www.sos.se Sällsynta diagnoser http://www.sallsyntadiagnoser.nu Mun-H-Center är ett nationellt orofacialt kunskapscenter www.mun-h-center.se