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DEBRA Meetings

Many of these articles and booklets are in PDF format. If you don`t have Acrobat Reader, get it now for free.

REPORT DEBRA CROATIA
Conference
“Meeting the Challenges”
Zagreb, Hotel Four Points, May 5-6, 2006
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EB-house Austria; Why I started all this..
Presentation held by Rainer Riedl, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006

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debra-Austria
EB house Austria

Presentation held on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Welcome to the EB house Austria
Prentation held by Gabriela Pohla-Gubo, PhD, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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dEBra -Chile
Presentation held on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Debra-Slovenia
President –Polona Zakošek

Presentation held on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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REPORT OF ASSOCIATION DebRA POLAND
Presentation held by Onyszko, Poland, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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dEBra - Czech Republic
Presentation held by Hrudkova, Czech Republic,
on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Epidermolysis bullosa in Russia
Presentation held by Albanova Vera,Russia,
on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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State of the art in EB Research
Presentation held by John A McGrath,
St John’s Institute of Dermatology, London UK, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Future strategies in EB Research
Presentation held by John A McGrath,
St John’s Institute of Dermatology , London Uk, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Director’s report for DEBRA Europe Annual General Meeting, Salzburg 2006.
By John Dart
Administrator, 24.10.2006
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AGM, Salzburg, Austria 21.10.2006:
SUMMARY OF SIX MONTHLY REPORTS
Information received from groups

By Janice Carrera and Guy Verdot
Administrator, 24.10.2006
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AGM, Salzburg, Austria 21.10.2006;
What is the European Disability Forum(EDF)?

By Guy Verdot
Administrator, 24.10.2006
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FUNDRAISER’S FORUM
Margaret Webb,
Debra Meeting Austria - October 2006
Administrator, 24.10.2006
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Sexuality, Relationships and the Adolescent
Presentation held by Jackie Hitchen, EB Nurse Consultant, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Epidermolysis Bullosa Pain management
Presentation held by Dr. Anja Diem, EB-Haus Austria, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Constipation and EB
Presentation held by Doris Wurzenrainer
Diaetologin, Kinderklinik Salzburg, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Osteoporosis in EB Osteoporosis in EB --
a dietitian’s-eye view

Presentation held by Lesley Haynes RD,
Specialist Paediatric Dietitian for EB
Great Ormond Street Hospital for Children, London, on Debra Europe/International-Meeting 2007, Salzburg, Austria
Administrator, 24.10.2006
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Ophthalmology and eb
Presentation held by Josef Stoiber, MD
Department of Ophthalmology and Optometry
Paracelsus Medical University Salzburg, on Debra Europe/International-Meeting 2007, Salzburg, Austria

Administrator 24.10.2006
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Debra Europe/International-Meeting 2007, Salzburg, Austria
Stress and Pain Management through Mindfulness
By Mag. Stefanie Mimra

Mindfulness-Based Stress-Reduction (MBSR),
Mindfulness-Based Cognitive Therapie (MBCT)
Jon Kabat-Zinn, J. Michalak & T. Heidenreich, Thich Nhat Hanh and M. Folkers
Administrator, 24.10.2006
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THE MINUTES OF THE MEETING OF THE DEBRA EUROPE EXECUTIVE COMMITTEE HELD ON THURSDAY 19 MAY 2006, LONDON
Administrator 24.10.2006
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Report coordinators meeting, Stockholm 2005
Administrator, 23.082005
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DEBRA EUROPE CONFERENCE 2004: Director’s report
Administrator 22.11.2004
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A word of welcome at the occasion of the International DEBRA Conference,Saturday, 16th October 2004 at the Convention-Centre, Holiday-Inn Hotel in Stuttgart-Weilersdorf
By Elke Hartig,
Administrator, 16.06.2006
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THE MINUTES OF THE DEBRA EUROPE EXECUTIVE COMMITTEE MEETING
HELD ON FRIDAY 15 OCTOBER 2004 AT THE HOLIDAY INN,
STUTTGART, GERMANY
Administrator 16.11.2004

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THE MINUTES OF THE DebRA EUROPE ANNUAL GENERAL MEETING
HELD ON SUNDAY 17 OCTOBER 2004 AT THE HOLIDAY INN, STUTTGART, GERMANY
Administrator, 16.11.2004
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THE MINUTES OF THE MEETING OF THE DEBRA EUROPE EXECUTIVE COMMITTEE
HELD ON FRIDAY 16 APRIL 2004 AT THE NOVOTEL, CHARLES DE GAULLE
AIRPORT,PARIS
Administrator, 16.11.2004
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Minutes of the 2003 DEBRA Europe conference in Switzerland.
Administrator, 03.03.2004
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The DEBRA International visioning Consensus meeting on EB
Administrator, 03.03.2004
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THE FUTURE DIRECTION OF DEBRA EUROPE
Administrator, 03.03.2004
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International DEBRA Meeting in London, UK, 2002
Administrator, 03.03.2004
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