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DebRA Research
Research Leaflet 13/10/06 16:19
Administrator, 24.10.2006
 Download this article THE ROLE OF PHYSIOTHERAPY IN THE SCHOOL – CHILD
WITH EPIDERMOLYSIS BULLOSA
Michelle Wood, Senior Physiotherapist GOSH.
Administrator 03.03.2006
Download this article PREGNANCY AND CHILDBIRTH IN EB and Childbirth in EB
DebRA UK EB Nurse Specialists, Adult Team
Liz Pillay – Senior EB Nurse Specialist
Jackie Hitchen – Senior EB Nurse Specialist
Jennie Hon – EB Nurse Specialist
Pauline Graham-King EB Nurse Specialist
Published by dEbra
Administrator, 03.03.2006
Download this article Epidermlysis Bullosa Simplex
Published by dEbra
Administrator, 26.01.2005
Download this article The Dowling Meara sub-type of EB simplex
Published by dEbra
Administrator, 26.01.2005
Download this article Mild Dystrophic Epidermolysis Bullosa
Published by dEbra
Administrator, 26.01.2005
Download this article Nutrition for Babies with Epidermolysis Bullosa
Lesley Haynes SRD, Specialist Paediatric Dietitian for EB
Great Ormond Street Hospital for Children NHS Trust
London WCIN 1JH, UK
If you want this booklet with cartoons, please send an email to: HayneL@gosh.nhs.uk
Administrator 22.04.2004
Download this article Epidermolysis Bullosa - Home Care Programme
KITTZ
Download this article Exercises for Mouth and Jaw
Written by Jane Leathwood, Senior Physiotherapist, St Thomas' Hospital, UK
Download this article Exercises for the mouth and tongue
Janice Carrera, social-worker, UK and Jane Leathwood, Senior Physiotherapist St Thomas' Hospital
Download this article Nutrition in Epidermolysis Bullosa, for children over 1 year of age
If you want this booklet with cartoons, please send an email to, Lesley Haynes
Lesley Haynes SRD, Dip ADP
Download this article THE EYES AND EB
Ms Gillian SIM Ophthalmic Nurse Specialist
Mr Malcolm Kerr-Muir Consultant Ophthalmologist
Download this article The Care of the New Baby with EB Initial Information
Jacqueline Denyer, Clinical nurse Specialist
Download this article |
