Articles and Booklets

Article by Gena Gruschovnik

October 29, 2006

Posted on www.ebnurse.org

Information for parents Jacqueline Denyer, EB Nurse Consultant

May 2007

by Lesley Haynes, Principal Dietitian

Revised February 2008.

Published by DebRA

By Lesley Haynes RD, Principal Paediatric Dietitian for

Epidermolysis Bullosa (EB). Great Ormond Street Hospital for Children, NHS Trust London WCIN 3JH, UK

Published by DebRA 2008

J. Denyer EB CNS DebRA UK

May 2005

Published by DebRA

Published by DebRA

Published by DebRA

Jacqueline Denyer, EB Nurse Consultant, September 2006, Published by DebRA

Published by DebRA 2006

U.S. Department of Health and Human Services

Public Health Service, National Institutes of Health

National Institute of Arthritis and Musculoskeletal and Skin Diseases

NIH Publication No. 03–7038, June 2003

DebRA UK EB Nurse Specialists, Adult Team

Liz Pillay – Senior EB Nurse Specialist

Jackie Hitchen – Senior EB Nurse Specialist

Jennie Hon – EB Nurse Specialist

Pauline Graham-King EB Nurse Specialist

With grateful thanks to those people with EB who have shared

their experiences of pregnancy and childbirth with the nursing

team.

Elia Martins, from Portugal, who has recessive dystrophic EB, gave birth to Bryan on 1st July 2002. Here she recalls her pregnancy.

Published in DEBRA´s newsletter,UK, 2003

Michelle Wood, Senior Physiotherapist GOSH.

DebRA of America, Inc

Janice Carrera, social-worker, UK and Jane Leathwood, Senior Physiotherapist St Thomas' Hospital

Janice Carrera, social-worker, UK and Jane Leathwood, Senior Physiotherapist St Thomas' Hospital