ESTABLISHMENT OF INTERNATIONAL EB FORUMS FOR HEALTHCARE PROFESSIONALS

The International EB (Epidermolysis Bullosa) Forum provides a comprehensive resource of treatment and care for those involved in the care of EB patients. All Forums are only for Professionals, so All Forums are protected by password and username.

Purpose

DEBRA International has established a series of forums for professionals with a special interest in EB to enable members to communicate easily with each other and access information concerning EB.

Members use the forums on a day-to-day basis to pass on information of general relevance to each other and to seek specific information or experiences about interventions that may be of help to their patients. Whenever possible, a meeting of the forum is organised each year.

We really hope this will be a start where we all can work together and collaborate on the issue of EB.

Like a butterfly
A person with EB is
Fragile,
Unique
May need the protection of a cocoon
But may learn to fly with
Proper care and treatment..
Kari og Heidi

What is DEBRA?

DEBRA was formed in 1978 by a group of parents of children with EB who were determined to give their children the best start in life. Their initial aim was to work together to help themselves. Self-help and mutual support continues to be an important part of DEBRA 's work even though DEBRA has grown considerably.

DEBRA is a charity and the only body exclusively committed to the support and care of families affected by EB, and increasing the quality of life of those with the condition. Over the years DEBRA has greatly extended its range of services.These now include funding research and specialist nurses and advisers for children and adults with all forms of EB as well as their families and carers.

This web-site has been funding from: